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Tuesday’s Child: Grendel’s Mother

A couple of weeks ago, my daughter was all set to go to university in the Big City. She’d made the decision, we’d met with the appropriate Official People, toured a dorm/cafeteria/classroom, discussed Everything Under the Sun, filled out all the paperwork, and made her Officially Official. She even bought herself a Big City sweatshirt.

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Sandy’s OI Conference Report

While I didn’t attend the OI conference last weekend, Sandy from Perfectly Imperfecta did. Check out her reflections on the conference HERE.

And, may I say I’m majorly jealous she was recognized by conference attendees as the “blogger”.

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Whirlwind Weekend

I ended up not going to the OI Conference this weekend. Scheduling, pricing and lack of motivation all played into my decision.  All the pictures, status updates and tweets from the conference made me second guess my decision to forgoe attending.  Actually all the posts… made me regret my decision. But, what’s done is done. Maybe you’ll see me in 2014.

I can’t wait to hear all of your stories and to get read all the information that was distributed during the event.

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Become

in kindergarten

When my daughter was very, very small, we used what we called a “stroller” to get her around. Provided by the local wheelchair vendor, the chair gave her table-height seating, appropriate positioning, and reclined fully, in the event she fractured. It was a great chair for her needs at the time, because she was so tiny, so delicate that there was no way she could push a wheelchair herself. Her arms and hands were so fragile and weak she couldn’t hold a pencil for very long.

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Indecision 2012

We joke in my family about my Libra indecisiveness. Picking out clothes for an important event–or even just for work–can be an excruciating challenge. Deciding what to make for dinner can cause such grappling that food doesn’t appear on plates until well after the dinner “hour” (what is that, anyway?). It’s not a constant problem–I *do* manage to get through 80% of my life without ever questioning the wisdom of putting on my left shoe before my right.

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Robin Roberts’ Cast Cover Fashion

Good Morning America’s Robin Roberts is battling a blood disease that will require her to have a bone marrow transplant. You can read more about her ordeal HERE.

She’s begin undergoing chemotherapy and is stylishly covering her PICC line with PICC Cover Fashions by Cast Cover Fashions.

Cast Cover Fashions offers a wide array of products to cover almost any cast or injury in a fashionable style! Their items are reasonably priced and the reviews of their products are phenomenal.

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4 Days Left…

There are only 4 days left to register for the OIF Conference, if you’re planning to attend. Find out more about the conference HERE!

I won’t be attending, but if you are I’d love to hear from those who are attending. Are you going? Are you excited? What do you hope to learn at conference?

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Summertime Casts

I love summer. My favorite summer past time is swimming at my local pool. There is something magical to me about splashing around the pool with those you love! This summer I’ve noticed and increased amount of kids at the pool swimming in their casts. Yesterday, I counted no less than 3 kids wading around the pool in their hard fiberglass casts. GASP!

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Tuesday’s Child:Papers

My daughter is in the final stages–which sounds remarkably like death throes–of filling out paperwork for state agency assistance. She turned 18 in December and we’ve been working on these for a while now. She’s filled out papers for the Department of Rehabilitation Services (DORS), for Supplemental Security Income (SSI), and for Medicaid, but there are somehow FOUR different agencies for which we are applying.

Frankly, we’ve lost track of all of the agencies to whom we are applying, who wants what and when they want it. One agency has told us that before they can process our application to *them*, we have to have applied for services through a *different* agency first. It’s possible we’ve already applied for that agency, but they need documentation.

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Curse of the Fragile Bone Disease

Source:The Herald Online
Roselyne Sachiti Deputy Features Editor
roselyne.sachiti@zimpapers.co.zw

The Matchazi family in Bulawayo’s Pelandaba suburb sticks out like a sore thumb, thanks to a rare health condition that has crippled them. The four suffer from osteogenesis imperfecta or brittle bone disease. In the medical field osteogenesis

imperfecta causes a defect in the production of a protein called collagen. Callogen is an important protein that helps support the body — the scaffold on which the body is built. Osteogenesis imperfecta is due to a genetic mutation in the gene that directs the body to produce callogen.

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