Posted on: January 9th, 2012 by Amanda
There are few things I hate more than my yearly bout with bronchitis. See it strikes like clockwork, see last year’s post. Although, I learned a lesson from last year’s spell and headed the doctor at the very start of my symptoms. I even one upped myself, and did something I never do… rest.
Posted on: January 4th, 2012 by Amanda
I love New Year’s Eve and New Year’s. Heck, that’s why I got married on New Year’s Day. (We just celebrated two years as Mr. and Mrs., in case your interested. I’m paying homage to the big event with a wedding day preview photo.) But, this year I’m abnormally excited for the New Year.
Last year, 2011 was terribly difficult for me. I enjoyed some really great times, but I spent much of the year stressed, defeated and near tears. That’s why I can’t wait to see what 2012 has in store for me.
In 2011, I opted to go to school full time, while working full time and attempting to function as a normal human being. This ultimately led to stress, tears and a disconnection from myself and my own dreams. But, I made it through to the other side.
Posted on: December 22nd, 2011 by Amanda
I’m going to take a hiatus to enjoy the upcoming holidays and finally rest up a bit. But, I’ll be back and better than ever in 2012.
See you in the New Year!
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Posted on: December 20th, 2011 by Amanda
I’ve never been one to limit my own physical abilities but Jacqueline from Unbreakable Stride, well she puts me to shame! Jacqueline like myself, was born with Type 1 OI and has experienced fractures totaling almost 20. She strives to keep her body in tip top physical shape and can frequently be found running or participating in Pilates class. Basically, I’m intrigued… fascinated and inspired by her. She’s my new fitness hero.
Jacqueline recently gave an interview to the Del Ray Patch, you can read it HERE.
Like Unbreakable Stride on FB, HERE. Follow her on Twitter @unbreakablestride.
Oh, and she’s also up for the Refuel with Chocolate Milk grant. Which if she wins she plans on donating the proceeds to the OIF. So, make sure you pay a visit to the Refuel grant page and vote. (You’ll need to search her first name Jacqueline to find her) Vote for Unbreakable Stride HERE.
Make sure you pay her pages a visit and tell her I sent you.
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Posted on: December 9th, 2011 by Amanda
There is a freedom about swimming and being in the water that is more than just independence. It’s more than the fact that I can walk, run, and jump in the water without fear of fracturing. More than just the fact that I can reach things from the bottom of the pool without needing to ask someone. I can do flips, float, and kick as hard as I want. In the water people look at me when I’m talking to them, not at my wheelchair. I am able to swim and keep up with friends and family, never needing to look for an accessible route or a low enough curb cut. In the water, as long as it’s not too crowded with flailing and splashing limbs, I hardly have to worry about having brittle bones. When I am walking or jumping in the water I am always amazed by the weightlessness of everything. For someone who relies on her wheelchair most of the time, being able to be mobile on my own two legs (without leg braces) is empowering. I have tried to explain this to my friends who don’t have O.I. but they usually look at me like I am extremely late to the party. I don’t know how else to explain it without sounding too cliche, but maybe if humans had wings and could go anywhere they wanted then everyone would understand how I feel about being in water – it’s freeing.
Posted on: December 1st, 2011 by Amanda
I’ve never ridden a traditional bike. There, I’ve admitted to it. Learning to ride a two wheel bike may seem like a simple childhood milestone, but when your kid growing up with osteogenesis imperfecta you sometimes miss out on some of life’s traditional moments.
Luckily for me, I have a very enterprising set of parents who made sure my dream of riding a bike became a reality. Only this reality required an adult size tricycle. I don’t remember the occasion but at some point my parents purchased me a used blue adult size tricycle with a basket in the back. I loved that bike; I loved riding around the neighborhood with my pup Jasmin in the basket. I loved it so much; I forgot that I wasn’t riding a normal bike. For years, I took spins around the neighborhood on that blue bike. I never once fell off or got injured tooling around my neighborhood. And, I have a great little party story to share when talk goes to bike riding!
I’m even thinking I want to have my bike repaired and start ridding again, although I think my current pup Clark will probably be too big to fit in the basket. Did you learn to ride a traditional bike? Or did you use an alternative too?
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Posted on: November 16th, 2011 by Amanda
Happy Belated 6 Month Anniversary to Perfectly Imperfecta!
I’m a day late, and maybe a dollar short. But, make sure to visit my contributor Sandy’s blog… Perfectly Imperfecta a Happy 6 Month Blogervasary.
Make sure you pay her a visit today.
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Posted on: November 7th, 2011 by Amanda
Friday, Sandy wrote about hiding fractures in her column Fracture Free Friday. I have to admit that I have hidden a fracture. I hid one for 48 hours. I was seven at the time and spending the night with a friend for a birthday sleepover. I loved sleepovers and spending time with my friends. All seemed well, as we tucked ourselves into our sleeping bags in the living room for a few hours of sleep.
Sometime during the night, one of the girls got up to go to the bathroom and stepped on my arm. I’m sure this happens all the time but in the case of a little girl with OI this leads to a green stick fracture. I knew it was broken as soon as the incident had happened. But, I thought I could with this one away.
Posted on: October 31st, 2011 by Amanda
There is an old adage that, what doesn’t kill you… makes you stronger… I used to firmly believe this, but lately I’m not so sure. I’m sure you’ve noticed my absence and the blog’s slow pace. Lately, the only entries have come from my stellar contributors!
This fall, I let life get ahead of me. I put entirely too much on my plate and it’s been a constant struggle just to stay above water! I’ve realized that I cannot continue with a plate this full. In case you don’t know, I work 40 hours plus a week at a demanding job; I’m a full time graduate student working on my doctorate degree. Luckily, I’m only teaching one course this semester…
Posted on: September 7th, 2011 by Amanda
I’ve long had a love hate relationship with medical ID bracelets. They are always too clunky or unattractive or too expensive. I’ve never found the right fit. I wrote about my relationship with medical ID bracelets here.
My Sticky J bracelet came in during the month of April, but I didn’t add it to my Pandora bracelet until two weeks ago. I thought before I gave a review, I’d test drive the product. My first response to the ID was that it was too big for the bracelet. I thought it was bulky, I’ve gotten over that now.