I’m enjoying the last days of summer… soaking in the sun and packing for our annual family vacation. I’ll be back September 3rd on a regular basis. Of course, we might sneak you an entry between now and then.
Copyright secured by Digiprove © 2012
Last week at the Osteogenesis Imperfecta conference, a brand new PSA was released. Check out the complete PSA here: OI PSA.
Unbreakable Spirit 1 from Wayne Westbrook on Vimeo.
Copyright secured by Digiprove © 2012
Duct tape, wallets and osteogenesis imperfecta… what on earth could these three things have in common?!?! Simple… one twelve year old Jake Grys. Jake took his talent for making duct tape wallets and turned those wallets into a dream trip to Chicago for a Comic Book Convention. Jake managed to raise enough funds to pay for his trip and his brother’s trip all from sales of his wallets.
Read more about Jake and his wallets, HERE.
Copyright secured by Digiprove © 2012
While I didn’t attend the OI conference last weekend, Sandy from Perfectly Imperfecta did. Check out her reflections on the conference HERE.
And, may I say I’m majorly jealous she was recognized by conference attendees as the “blogger”.
Copyright secured by Digiprove © 2012
I ended up not going to the OI Conference this weekend. Scheduling, pricing and lack of motivation all played into my decision. All the pictures, status updates and tweets from the conference made me second guess my decision to forgoe attending. Actually all the posts… made me regret my decision. But, what’s done is done. Maybe you’ll see me in 2014.
I can’t wait to hear all of your stories and to get read all the information that was distributed during the event.
I had big plans for Sunday- Wednesday… I was planning on visiting extended family in WV to celebrate the July 4th holiday. However, the storms of last Friday night left my family’s small community without power for 7-10 days. Yikes! That definitely didn’t sound like a restful vacation.
Instead, I did something I’ve never done before… I stayed home… without plans! No plans, nowhere to be and no emails to answer, no blogs to write… It was a much needed slice of heaven. There was a ton of time spent at the pool, lighting fireworks and watching TV.
Good Morning America’s Robin Roberts is battling a blood disease that will require her to have a bone marrow transplant. You can read more about her ordeal HERE.
She’s begin undergoing chemotherapy and is stylishly covering her PICC line with PICC Cover Fashions by Cast Cover Fashions.
Cast Cover Fashions offers a wide array of products to cover almost any cast or injury in a fashionable style! Their items are reasonably priced and the reviews of their products are phenomenal.
There are only 4 days left to register for the OIF Conference, if you’re planning to attend. Find out more about the conference HERE!
I won’t be attending, but if you are I’d love to hear from those who are attending. Are you going? Are you excited? What do you hope to learn at conference?
Copyright secured by Digiprove © 2012
I love summer. My favorite summer past time is swimming at my local pool. There is something magical to me about splashing around the pool with those you love! This summer I’ve noticed and increased amount of kids at the pool swimming in their casts. Yesterday, I counted no less than 3 kids wading around the pool in their hard fiberglass casts. GASP!
Source:The Herald Online
Roselyne Sachiti Deputy Features Editor
roselyne.sachiti@zimpapers.co.zw
The Matchazi family in Bulawayo’s Pelandaba suburb sticks out like a sore thumb, thanks to a rare health condition that has crippled them. The four suffer from osteogenesis imperfecta or brittle bone disease. In the medical field osteogenesis
imperfecta causes a defect in the production of a protein called collagen. Callogen is an important protein that helps support the body — the scaffold on which the body is built. Osteogenesis imperfecta is due to a genetic mutation in the gene that directs the body to produce callogen.
